1. Heyland DK, Groll D, Rocker G, Dodek P, Gafni A, Tranmer J, Pichora D, Lazar N, Kutsogiannis J, Shortt S, Lam M; Canadian Researchers at the End of Life Network (CARENET). End-of-life care in acute care hospitals in Canada: a quality finish? J Palliat Care. 2005 Autumn;21(3):142-50. PubMed PMID: 16334968. 
  2. Frank C, Heyland DK, Pichora D. CARENET: A resource for researchers in end-of-life care. Can J Geriatr 2006 Jan;9(4):147-149. 
  3. Heyland DK, Dodek P, Rocker G, Groll D, Gafni A, Pichora D, Shortt S, Tranmer  J, Lazar N, Kutsogiannis J, Lam M; Canadian Researchers End-of-Life Network(CARENET). What matters most in end-of-life care: perceptions of seriously ill patients and their family members. CMAJ. 2006 Feb 28;174(5):627-33. PubMed PMID: 16505458. 
  4. Rocker GM, Rocker GM, Dodek PM, Heyland DK; Canadian Researchers at the End of Life Network. Toward optimal end-of-life care for patients with advanced chronic obstructive pulmonary disease: insights from a multicentre study. Can Respir J. 2008 Jul-Aug;15(5):249-54. PubMed PMID: 18716686. 
  5. Schroder C, Heyland DK, Jiang X, Rocker G, Dodek P; Canadian Researchers at the End of Life Network. Educating medical residents in end-of-life care: insights from a multicenter survey. J Palliat Med. 2009 May;12(5):459-70. PubMed PMID: 19416043.
  6. Heyland DK, Allan DE, Rocker G, Dodek P, Pichora D, Gafni A; Canadian Researchers at the End-of-Life Network (CARENET). Discussing prognosis with patients and their families near the end of life: impact on satisfaction with end-of-life care. Open Med. 2009 Jun 16;3(2):e101-10. PubMed PMID: 19946391.
  7. Strachan PH, Ross H, Rocker GM, Dodek PM, Heyland DK; Canadian Researchers at  the End of Life Network (CARENET). Mind the gap: Opportunities for improving end-of-life care for patients with advanced heart failure. Can J Cardiol. 2009 Nov;25(11):635-40. PubMed PMID: 19898695. 
  8. Heyland DK, Cook DJ, Rocker GM, Dodek PM, Kutsogiannis DJ, Skrobik Y, Jiang X, Day AG, Cohen SR; Canadian Researchers at the End of Life Network. The development and validation of a novel questionnaire to measure patient and family satisfaction with end-of-life care: the Canadian Health Care Evaluation Project (CANHELP) Questionnaire. Palliat Med. 2010 Oct;24(7):682-95. PubMed PMID: 20605850.
  9. Heyland DK, Cook DJ, Rocker GM, Dodek PM, Kutsogiannis DJ, Skrobik Y, Jiang X, Day AG, Cohen SR; Canadian Researchers at the End of Life Network (CARENET). Defining priorities for improving end-of-life care in Canada. CMAJ. 2010 Nov 9;182(16):E747-52. PubMed PMID: 20921249.
  10. Dodek PM, Wong H, Heyland DK, Cook DJ, Rocker GM, Kutsogiannis DJ, Dale C, Fowler R, Robinson S, Ayas NT; Canadian Researchers at the End of Life Network (CARENET). The relationship between organizational culture and family satisfaction in critical care. Crit Care Med. 2012 May;40(5):1506-12. PubMed PMID: 22511132. 
  11. Heyland DK, Barwich D, Pichora D, Dodek P, Lamontagne F, You JJ, Tayler C, Porterfield P, Sinuff T, Simon J; ACCEPT (Advance Care Planning Evaluation in Elderly Patients) Study Team; Canadian Researchers at the End of Life Network (CARENET). Failure to engage hospitalized elderly patients and their families in advance care planning. JAMA Intern Med. 2013 May 13;173(9):778-87. PubMed PMID: 23545563. 
  12. Johnson AP, Hanvey L, Baxter S, Heyland DK; Canadian Researchers at the End of Life Network. Development of advance care planning research priorities: a call to action. J Palliat Care. 2013 Summer;29(2):99-106. PubMed PMID: 23923473. 
  13. Heyland DK, Jiang X, Day AG, Cohen SR; Canadian Researchers at the End of Life Network (CARENET). The development and validation of a shorter version of the Canadian Health Care Evaluation Project Questionnaire (CANHELP Lite): a novel tool to measure patient and family satisfaction with end-of-life care. J Pain Symptom Manage. 2013 Aug;46(2):289-97. PubMed PMID: 23102756. 
  14. You JJ, Fowler RA, Heyland DK; Canadian Researchers at the End of Life Network (CARENET). Just ask: discussing goals of care with patients in hospital with serious illness. CMAJ. 2014 Apr 1;186(6):425-32. PubMed PMID: 23857860. 
  15. You JJ, Dodek P, Lamontagne F, Downar J, Sinuff T, Jiang X, Day AG, Heyland DK; ACCEPT Study Team and the Canadian Researchers at the End of Life Network (CARENET). What really matters in end-of-life discussions? Perspectives of patients in hospital with serious illness and their families. CMAJ. 2014 Dec 9;186(18):E679-87. PubMed PMID: 25367427.
  16. Teixeira AA, Hanvey L, Tayler C, Barwich D, Baxter S, Heyland DK; Canadian Researchers at End of Life Network (CARENET). What do Canadians think of advanced care planning? Findings from an online opinion poll. BMJ Support Palliat Care. 2015 Mar;5(1):40-7. PubMed PMID: 24644188. 
  17. Heyland DK, Dodek P, Mehta S, Cook D, Garland A, Stelfox HT, Bagshaw SM, Kutsogiannis DJ, Burns K, Muscedere J, Turgeon AF, Fowler R, Jiang X, Day AG; Canadian Critical Care Trials Group and Canadian Researchers at End of Life Network (CARENET). Admission of the very elderly to the intensive care unit: family members' perspectives on clinical decision-making from a multicenter cohort study. Palliat Med. 2015 Apr;29(4):324-35. PubMed PMID: 25645668.
  18. You JJ, Downar J, Fowler RA, Lamontagne F, Ma IW, Jayaraman D, Kryworuchko J, Strachan PH, Ilan R, Nijjar AP, Neary J, Shik J, Brazil K, Patel A, Wiebe K, Albert M, Palepu A, Nouvet E, des Ordons AR, Sharma N, Abdul-Razzak A, Jiang X, Day A, Heyland DK; Canadian Researchers at the End of Life Network. Barriers to goals of care discussions with seriously ill hospitalized patients and their families: a multicenter survey of clinicians. JAMA Intern Med. 2015 Apr;175(4):549-56. PubMed PMID: 25642797.  
  19. Heyland DK, Cook D, Bagshaw SM, Garland A, Stelfox HT, Mehta S, Dodek P, Kutsogiannis J, Burns K, Muscedere J, Turgeon AF, Fowler R, Jiang X, Day AG; Canadian Critical Care Trials Group; Canadian Researchers at the End of Life Network. The Very Elderly Admitted to ICU: A Quality Finish? Crit Care Med. 2015 Jul;43(7):1352-60. PubMed PMID: 25901550.  
  20. Heyland DK, Stelfox HT, Garland A, Cook D, Dodek P, Kutsogiannis J, Jiang X, Turgeon AF, Day AG; Canadian Critical Care Trials Group and the Canadian Researchers at the End of Life Network. Predicting Performance Status 1 Year After Critical Illness in Patients 80 Years or Older: Development of a Multivariable Clinical Prediction Model. Crit Care Med. 2016 Sep;44(9):1718-26. PubMed PMID: 27075141.  
  21. Heyland DK, Dodek P, You JJ, Sinuff T, Hiebert T, Tayler C, Jiang X, Simon J, Downar J; ACCEPT Study Team and the Canadian Researchers at the End of Life Network (CARENET). Validation of quality indicators for end-of-life communication: results of a multicentre survey. CMAJ. 2017 Jul 31;189(30):E980-E989. PubMed PMID: 28760834. 
  22. Heyland DK, Heyland R, Dodek P, You JJ, Sinuff T, Hiebert T, Jiang X, Day AG; ACCEPT Study Team and the Canadian Researchers at the End of Life Network (CARENET). Discordance between patients' stated values and treatment preferences for end-of-life care: results of a multicentre survey. BMJ Support Palliat Care. 2017 Sep;7(3):292-299. PubMed PMID: 28827369.

Dear Friend,

We thank you for your interest in our work but the CARENET website has ceased to exist. What started as a small multi-disciplinary collaboration between doctors, nurses, researchers and other clinicians evolved into a CIHR-funded new emerging team grant from 2005-2009 and ultimately morphed into a Network Center of Excellence (initially called “Technology Evaluation in the Elderly Network (or TECH VALUE NET), now call Canadian Frailty Network).  

Led by Dr. Daren Heyland, CARENET initially had a focus on developing and evaluating strategies to improve communication and decision-making in the context of serious illness. For a sample of some of the publications emerging from CARENET, please click here. 

The results of this multidisciplinary collaborate research informed the development of 2 novel, public-facing, online decision support tools: www.planwellguide.com and www.myicuguide.com.  

If you are looking for more information on the “Family Satisfaction with ICU Questionnaire, see www.fsicu.ca. 

If you are looking for more information on the CANHELP questionnaire, click here 

For all other questions or matters, feel free to contact Shawna Froese at This email address is being protected from spambots. You need JavaScript enabled to view it..

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