The Canadian Researchers at the End of Life Network (CARENET) is a group of health care professionals from across the country that collaborate with each other to understand and improve palliative and end-of-life care.

BOSTON--(BUSINESS WIRE)--Sep 12, 2018--ACP Decisions is pleased to announce that eighteen of its decision aids focused on end-of-life care have been certified by the Washington State Health Care Authority. ACP Decisions is one of only four organizations in the U.S. to receive certification within the end-of-life care category. Read More>

Causes of moral distress in the intensive care unit: A qualitative study.
Pub Med.
Henrich NJ, Dodek PM, Alden L, Keenan SP, Reynolds S, Rodney P.
October 2016.

TORRANCE, Calif.—Rod Hochman vividly remembers watching his father die the wrong way, laid out by a stroke at age 78, hooked up to a ventilator and an intravenous drip in an ICU, his last hours spent in a hospital. It was the most aggressive care modern medicine could offer, and the family later came to understand that it was unlikely to save him. It was not how he wanted to end his days. Read more>

Recovery after critical illness in patients aged 80 years or older: a multi-center prospective observational cohort study. 
Intensive Care Med.
Heyland DK, Garland A, Bagshaw SM, Cook D, Rockwood K, Stelfox HT, Dodek P, Fowler RA, Turgeon AF, Burns K, Muscedere J, Kutsogiannis J, Albert M, Mehta S, Jiang X, Day AG.   
November 2015.

A few weeks ago, on my way to see a patient in the hospital, I ran into a cardiologist who I like a lot. We have cared for a few patients together—people whose hearts had failed so severely that he didn’t have anything useful to offer them anymore, and they were transitioned to the palliative care unit, where I work, to die. Read more>

The Very Elderly Admitted to ICU: A Quality Finish?
Crit Care Med. 
Heyland D, Cook D, Bagshaw SM, Garland A, Stelfox HT, Mehta S, Dodek P, Kutsogiannis J, Burns K, Muscedere J, Turgeon AF, Fowler R, Jiang X, Day AG;Canadian Critical Care Trials Group; Canadian Researchers at the End of Life Network.  
July 2015.


“Don’t you think he looks comfortable right now?”

We stand quietly at the foot of the bed and watch. The patient lies semisupine in the mechanical bed, intermittently breathing slowly and deeply before longer apneic pauses. Despite the soft groan of the bilevel positive airway pressure machine and the occasional chirps from 4 continuous intravenous drips, he seems settled, arms open, hands unfolded to the fluorescent overhead lighting. Even in this state of unconsciousness, he seems to be preparing to die. Read more>


Admission of the very elderly to the intensive care unit: family members' perspectives on clinical decision-making from a multicenter cohort study. 
Palliat Med.
Heyland DK, Dodek P, Mehta S, Cook D, Garland A, Stelfox HT, Bagshaw SM, Kutsogiannis DJ, Burns K, Muscedere J, Turgeon AF, Fowler R, Jiang X, Day AG; Canadian Critical Care Trials Group and Canadian Researchers at End of Life Network (CARENET).
2015 Apr.


Dr. Shoshana Ungerleider is bringing together a cross-disciplinary set of minds to reimagine what dying in America looks like today starting with palliative care in the United States. After years of seeing how the system provides less-than-desirable services to patients and their families, Ungerleider extended her career as an internist at one of the best teaching hospitals in the country to focus on awakening a global movement with the End Well Foundation. Read More>

Predicting Performance Status 1 Year After Critical Illness in Patients 80 Years or Older: Development of a Multivariable Clinical Prediction Model.
Crit Care Med.
Heyland DK, Stelfox HT, Garland A, Cook D, Dodek P, Kutsogiannis J, Jiang X, Turgeon AF, Day AG; Canadian Critical Care Trials Group and the Canadian Researchers at the End of Life Network.
April 13, 2016 

Many critically ill hospital patients would rather not have aggressive medical interventions, such as CPR, at the end of their lives. But a new study shows that in Canada, their wishes often don't match up with patients' hospital charts.

Read more and listen to the interview>


End of life care in acute care hospitals in Canada. A quality finish? 
J Palliat Care.
Heyland D, Groll D, Rocker G, Dodek P, Gafni A, Tranmer J, Pichora D, Lazar N, Kutsogiannis J, Shortt S, Lam M, for the Canadian Researchers at the End of Life Network (CARENET).  
Autumn 2005.

Understanding cardiopulmonary resuscitation decision making: Perspectives of seriously ill hospitalized patients and family members.
Heyland D, Frank C, Groll, D, Pichora D, Dodek P, Rocker G, Gafni A for the Canadian Researchers at the End of Life Network (CARENET).   
August 2006.


CARENET: A resource for researchers in end-of-life care.
Can J Geriatr.
Frank C, Heyland D, Pichora D.

To provide an overview of the current state of research of advance care planning (ACP), highlighting most studied topics, publication time, quality of studies and reported outcomes, and to identify gaps to improve ACP receptivity, utilization, implementation, and outcomes. Read more

The Department of Veterans Affairs (VA) is likely the largest provider of health care for LGBT persons in US. However, histories of homophobia, stigma, discrimination, and past military policies have all had a lasting impact on the health of LGBT veterans. Effects can be seen across healthcare needs, disparities, access, and utilization for or by LGBT veterans. Read more.

Life support decision making in critical care: Identifying and appraising the qualitative research evidence. 
Critical Care Medicine. 
Giacomini M, Cook D, DeJean D, in collaboration with the Canadian Researchers at the End of Life Network (CARENET).
Apr. 2009.

The doctor patient relationship in Singapore is changing.

In decades past, it was typically the doctor who made treatment decisions on behalf of patients, sometimes with input from the patients and/or their families, and sometimes without any input at all. Read more

Discussing prognosis with patients and their families near the end of life: Impact on satisfaction with end of life care.
Open Med. 
Heyland D, Allan E, Rocker G, Dodek P, Pichora D, Gafni A.
June 16th, 2009. 

The McGill Quality of Life Questionnaire has been widely used with people with life-threatening illnesses without modification since its publication in 1996. With use, areas for improvement have emerged; therefore, various minor modifications were tested over time.

To revise the McGill Quality of Life Questionnaire (McGill Quality of Life Questionnaire–Revised) while maintaining or improving its psychometric properties and length, keeping it as close as possible to the McGill Quality of Life Questionnaire to enable reasonable comparison with existing McGill Quality of Life Questionnaire literature.

More about the questionnaire

'Living with death': The evolution of the family member's experience of mechanical ventilation.
Critical Care Medicine. 
Sinuff T, Giacomini M, Shaw R, Swinton M, Cook D. for the Canadian Researchers at the End of Life Network (CARENET).  
Jan. 2009.

Satisfaction with end of life care: A longitudinal study of patients and their family caregivers in the last months of life.
J Palliative Care.
Heyland DK, Frank C, Tranmer J, Paul N, Pichora D, Jiang X, Day A, for the Canadian Researchers at the End of Life Network (CARENET).
Winter 2009.

Moral distress in intensive care unit professionals is associated with profession, age, and years of experience
Journal of Critical Care
Peter M. Dodek, MD, MHS, Hubert Wong, PhD, Monica Norena, MS, Najib Ayas, MD, MPH, Steven C. Reynolds, MD, Sean P. Keenan, MD, MSc, Ann Hamric, RN, PhD, Patricia Rodney, RN, PhD, Miriam Stewart, RN, BSN, BA, Lynn Alden, PhD
February 2016.

What do Canadians think of advance care planning? Findings from an online opinion poll.
BMJ Supportive Palliative Care.
Teixeira A, Hanvey L, Tayler, C, Heyland DK et al. 
Oct 4, 2013.

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