The Canadian Researchers at the End of Life Network (CARENET) is a group of health care professionals from across the country that collaborate with each other to understand and improve palliative and end-of-life care.

To provide an overview of the current state of research of advance care planning (ACP), highlighting most studied topics, publication time, quality of studies and reported outcomes, and to identify gaps to improve ACP receptivity, utilization, implementation, and outcomes. Read more

 

End of life care in acute care hospitals in Canada. A quality finish? 
J Palliat Care.
Heyland D, Groll D, Rocker G, Dodek P, Gafni A, Tranmer J, Pichora D, Lazar N, Kutsogiannis J, Shortt S, Lam M, for the Canadian Researchers at the End of Life Network (CARENET).  
Autumn 2005.

The Department of Veterans Affairs (VA) is likely the largest provider of health care for LGBT persons in US. However, histories of homophobia, stigma, discrimination, and past military policies have all had a lasting impact on the health of LGBT veterans. Effects can be seen across healthcare needs, disparities, access, and utilization for or by LGBT veterans. Read more.

Understanding cardiopulmonary resuscitation decision making: Perspectives of seriously ill hospitalized patients and family members.
Chest.
Heyland D, Frank C, Groll, D, Pichora D, Dodek P, Rocker G, Gafni A for the Canadian Researchers at the End of Life Network (CARENET).   
August 2006.

 

The doctor patient relationship in Singapore is changing.

In decades past, it was typically the doctor who made treatment decisions on behalf of patients, sometimes with input from the patients and/or their families, and sometimes without any input at all. Read more

What matters the most in end-of-life care: Perceptions of seriously ill patients and their family members.
CMAJ. 
Heyland D, Dodek P, Rocker G, Groll D, Gafni A, Pichora D, Shortt S, Tranmer J, Lazar N, Kutsogiannis J, Lam M, for the Canadian Researchers at the End of Life Network (CARENET).
Feb 28, 2006.

The McGill Quality of Life Questionnaire has been widely used with people with life-threatening illnesses without modification since its publication in 1996. With use, areas for improvement have emerged; therefore, various minor modifications were tested over time.

To revise the McGill Quality of Life Questionnaire (McGill Quality of Life Questionnaire–Revised) while maintaining or improving its psychometric properties and length, keeping it as close as possible to the McGill Quality of Life Questionnaire to enable reasonable comparison with existing McGill Quality of Life Questionnaire literature.

More about the questionnaire

CARENET: A resource for researchers in end-of-life care.
Can J Geriatr.
Frank C, Heyland D, Pichora D.
2006.

'Living with death': The evolution of the family member's experience of mechanical ventilation.
Critical Care Medicine. 
Sinuff T, Giacomini M, Shaw R, Swinton M, Cook D. for the Canadian Researchers at the End of Life Network (CARENET).  
Jan. 2009.

Educating medical residents in end-of-life care: Results of a national survey.
J Palliat Med.
Schroder C, Heyland D, Jiang X, Rocker G, Dodek P, for the Canadian Researchers at the End of Life Network (CARENET).
May 2009.

Moral distress in intensive care unit professionals is associated with profession, age, and years of experience
Journal of Critical Care
Peter M. Dodek, MD, MHS, Hubert Wong, PhD, Monica Norena, MS, Najib Ayas, MD, MPH, Steven C. Reynolds, MD, Sean P. Keenan, MD, MSc, Ann Hamric, RN, PhD, Patricia Rodney, RN, PhD, Miriam Stewart, RN, BSN, BA, Lynn Alden, PhD
February 2016.

Causes of moral distress in the intensive care unit: A qualitative study.
Pub Med.
Henrich NJ, Dodek PM, Alden L, Keenan SP, Reynolds S, Rodney P.
October 2016.

Defining priorities for improving end-of-life care in Canada.
CMAJ.
Heyland DK, Cook DJ, Rocker GM, Dodek PM, Kutsogiannis DJ, Skrobik Y, Jiang X, Day AG, Cohen SR.
Nov. 9th, 2010.

Recovery after critical illness in patients aged 80 years or older: a multi-center prospective observational cohort study. 
Intensive Care Med.
Heyland DK, Garland A, Bagshaw SM, Cook D, Rockwood K, Stelfox HT, Dodek P, Fowler RA, Turgeon AF, Burns K, Muscedere J, Kutsogiannis J, Albert M, Mehta S, Jiang X, Day AG.   
November 2015.

The Very Elderly Admitted to ICU: A Quality Finish?
Crit Care Med. 
Heyland D, Cook D, Bagshaw SM, Garland A, Stelfox HT, Mehta S, Dodek P, Kutsogiannis J, Burns K, Muscedere J, Turgeon AF, Fowler R, Jiang X, Day AG;Canadian Critical Care Trials Group; Canadian Researchers at the End of Life Network.  
July 2015.

 

Just ask: discussing goals of care with patients in hospital with serious illness.
CMAJ.
You JJ, Fowler RA, Heyland DK; Canadian Researchers at the End of Life Network (CARENET)
2014.

 

Admission of the very elderly to the intensive care unit: family members' perspectives on clinical decision-making from a multicenter cohort study. 
Palliat Med.
Heyland DK, Dodek P, Mehta S, Cook D, Garland A, Stelfox HT, Bagshaw SM, Kutsogiannis DJ, Burns K, Muscedere J, Turgeon AF, Fowler R, Jiang X, Day AG; Canadian Critical Care Trials Group and Canadian Researchers at End of Life Network (CARENET).
2015 Apr.

 

Enhancing the quality of end-of-life care in Canada.
CMAJ.
Cook D, Rocker G, Heyland DK.
Nov 5, 2013

 

Predicting Performance Status 1 Year After Critical Illness in Patients 80 Years or Older: Development of a Multivariable Clinical Prediction Model.
Crit Care Med.
Heyland DK, Stelfox HT, Garland A, Cook D, Dodek P, Kutsogiannis J, Jiang X, Turgeon AF, Day AG; Canadian Critical Care Trials Group and the Canadian Researchers at the End of Life Network.
April 13, 2016 

What do Canadians think of advance care planning? Findings from an online opinion poll.
BMJ Supportive Palliative Care.
Teixeira A, Hanvey L, Tayler, C, Heyland DK et al. 
Oct 4, 2013.

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