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This conversation guide was developed by the following members of the Canadian Researchers at the End of Life Network: Daren Heyland, John You, James Downar, Jessica Simon, Carolyn Tayler, Cari Borenko Hoffmann, Doris Barwich, Peter Dodek, Jeff Shaw, and Louise Hanvey.
The following resources were used in the development of this guide:
You J, Dodek P Lamontagne F, Downar J, Sinuff T Jiang X, Day A, Heyland DK for the ACCEPT Study Team and the Canadian Researchers at the End of Life Network (CARENET). What Really Matters in End of Life Discussions? Perspectives of Seriously Ill Hospitalized Patients and Their Families. CMAJ 2014 Nov 3 published online
Smith AK, White DB, Arnold RM. Uncertainty â€” The Other Side of Prognosis. NEJM 2013;368(26):2448-2450.
Parry R, Land V, Seymour J. How to communicate with patients about future illness progression and end of life: A systematic review. BMJ Supportive and Palliative Care 2014;4:331-341.
Communication about serious illness care goals: A review and synthesis of best practices. JAMA Intern Med 2014; published on line October 20, 2014.
Roeland E, et al. When Open-Ended Questions Don't Work: The Role of Palliative Paternalism in Difficult Medical Decisions. J Pall Med 2014;17:415-421.